Create optimal national datasets based on existing infrastructure
Sweden has a health-data system with great coverage, but which is highly heterogenous and fragmented. It is in some ways a reflection of the total health system but in the past years decisions have been taken on changes that enable a more sustainable, connected, holistic way of viewing, regulating, and controlling the system, for example “Kunskapsstyrningen” and the processes outlined in “Läkemedelsutredningen”. Steps have been taken in the same direction regarding health data, but the usage of the services built have remained in silos and the system as a whole has gained little benefit from the IT infrastructure investments.
Key is the national service platform (“Nationella Tjänsteplattformen”, NTjP) which in theory could be the gate to all the health data generated in Swedish healthcare but which in practise is not used for research and follow up. Enabling this kind of usage would revolutionize the way research is done and the way evaluation of health investments is done, it would be a truly disruptive move.
Sweden needs a structured model to prepare for introductions of these new innovations in healthcare. That model will also in itself give rise to new innovations since data will be the basis for much of the innovative work in future healthcare, for example regarding predictive algorithms.